Today is World Rare Disease Day which aims to raise awareness for the 400 million people affected by one of the 7,000 rare diseases that exist today. It is very important to be aware of the many diseases that plague the world and we usually hear about the common diseases that can afflict any of us at some point, but the rare diseases are those that do not have as much attention. This observance is important as it provides a chance to learn more about rare diseases and what can be done to help elevate the cause and shine light on the issue. The website for rare disease states the following facts we think you should be made aware:
- Eight in 10 rare diseases are caused by a faulty gene
- The average time it takes for rare patients to receive an accurate diagnosis is 4.8 years
- 95% of rare diseases lack FDA approved treatment
- Rare diseases impact more people than cancer and AIDS combined
- Rare diseases do not have a foundation or research support group
We think this cause is important to know about as it affects many people who may feel helpless due to a lack of treatment and awareness. To find out more, visit GlobalGenes.org.
